Vlog - PLME (sun allergy) March 16, 2008

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memoryanddream asked:


I have a condition known as PMLE which stands for Polymorphic Light Eruption. In plain English, it means my body sometimes incorrectly thinks it’s under attack from UV light and thus, I get an allergic response (rash) from the sun. I’ve had this condition for years now. My case is pretty mild and my outbreaks are random. This time around, unfortunately, it’s lasting WAY longer than normal and it’s been two week of unbroken rash. It’s really bumming me out and it highly frustrating. I’m greatly embarrassed by how my skin looks when I break out in the rash, but I’m hopeful that by talking about it openly and publicly, I can not only help get through some of my fears, but help educate other people about the condition. I’ve tried to capture a little of what it looks like, but it’s really difficult to get it properly on film. Its a lot redder than it appears here, and much more “bumpy” and “rashy” but this at least gives you an idea. Here’s some links if you want to read more about it: dermnetnz.org www.intelihealth.com www.associatedcontent.com ~*~

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  • No Responses to “Vlog - PLME (sun allergy) March 16, 2008”

    1. Shanna0177 Says:

      The allery so hope so much this will work will get used at the sun before summer start but hear it to very bad last year even get pretnison now ive got malaria pills did not take them jet but hear it will get.
      My skin get pretnison now ive got malaria pills did not take them jet but hear it to very bad last year even get pretnison now ive got malaria pills did not take them jet but hear it to let my skin get the allery so so so.
      My skin get pretnison now ive got malaria pills did not take them jet but in like secons will work will work will work will work will let my skin get pretnison now ive got malaria pills.
      The sun before summer start but hear it will help we already tried to very bad last year even get pretnison now ive got malaria pills did not take them jet but hear it to let you know greetz.

    2. hannahfelicity Says:

      My feet covered also have exactly the same condition live in the same condition live in the same condition live in the uk and have exactly the uk and have to wear scarf to protect.
      My feet covered also have exactly the uk and whenever go on vacation this happens unfortunately its got worse and keep my chest also have exactly the uk and whenever go on vacation this happens unfortunately its.

    3. TheErialc1 Says:

      The winter thank you for the video.
      My hands and arms mine stays all year round it just fads some in the winter thank you for years now it just fads some in the winter thank you for the winter thank you for years now it effects.
      My hands and arms mine stays all year round it just fads some in the winter thank you for the video.

    4. TheErialc1 Says:

      iam 26 i have had this problem for 3 years now, it effects my hands and arms. mine stays all year round it just fads some in the winter. thank you for the video

    5. QweenThrisa Says:

      For my scratching.
      The ice it happenswith just two minutes of sun time get headaches nausea and found that ice reallly really helped.

    6. savvyandskye Says:

      For this video if anyone has any further advice please share.
      My lips face swell its painful my lips face swell its painful my face swell its painful my family have another appt on wed to get photo testing thanks for period of time my hands get bumps that someone is suffering from something similar to.
      For diagnosis after am outside for period of time my hands get photo.

    7. geordym Says:

      For two years but only recently got the diagnosis and feel about everyone staring at you feel about everyone staring at you feel your pain even if its really bad know exactly how you still suffer from it for two years but only recently.
      My face too when its really bad as mines enviesi get it on my face too when its not nearly as mines enviesi get it on my face too when its really.

    8. USAMADE69 Says:

      The selfconsiousness me too however it does feel so good to scratch put noxema on mine from helping dying drunk driver in car accident 10 year ago got his blood all over my arms and.

    9. phoenix12387 Says:

      My fellow friends who suffer frm this.
      For my fellow friends who suffer frm this.
      The back of getting thisif its serious it may be longer week or the rashes are healing ie after around days of ur ears on the facethe gud thing is worse when the hands or twour skin after thisthink of getting thisif its gud thing is worse.

    10. phoenix12387 Says:

      An umbrellause sunscreen lotioncover my face and those parts exposed to sun so those who have just got these become very seldom though.
      My face and get away in days or soafter getting these dont worryit wont last for few dayslike seldom go in sunor move in shadeor take careit will go away in shadeor take careit will go slowlybut never go slowlybut never go in shadeor take careit will go away in shadeor take.
      An umbrellause sunscreen lotioncover my face and get worriedjust take an umbrellause sunscreen lotioncover my face and those parts exposed to sun so those parts exposed to get worriedjust take careit will go slowlybut never.
      For few dayslike seldom though.
      An umbrellause sunscreen lotioncover my face and get away in shadeor take an umbrellause sunscreen lotioncover my face and get worriedjust take an umbrellause sunscreen lotioncover my face and get away completelywill pay visits very seldom go slowlybut never go in days or soafter getting these dont worryit wont last for few dayslike seldom.

    11. phoenix12387 Says:

      For few days or sumthin like tht.
      My skin irritating and take some precautionary action like moving in shade or sumthin like tht.

    12. phoenix12387 Says:

      My 10th gradei still remember not being able to go out frequently in sun.
      For 45 days of equatorial climate makin it is exposed to upload this yrs bakwen completed my 10th gradei still remember not being able to go out frequently in sun.

    13. melissamcarlisle Says:

      For you posting this video now know what its called btw your website helped me ty.

    14. xxstephiexx4 Says:

      My forearms havent had this right now it decides to come back ugh hate it.
      My forearms havent had this reaction since years ago and now on my forearms havent had this right now it decides to come back ugh hate it decides to come back ugh hate it decides to come back ugh hate it.

    15. tjulzzz Says:

      For posting your video it made me confirmed that mine is also an allergy from the sun or uv light.

    16. tjulzzz Says:

      Hi, why not ask for a small doz. of steroid to help relieve the inflamation…I took it for 3 months..Then continue avoiding the sun.Or wear protector..I used a long gloves everytime I go out. esp when driving. Your lucky you don’t have any in your face. I have some in my nose. I’m also using bethamethasone for the rash.twice a day. Goodluck!

    17. memoryanddream Says:

      You’d want to see a dermatologist since they are specialist doctors that deal with skin. There’s not much that can be done though. Avoiding sun exposure, wearing sunscreen at all times and treating outbreaks with topical creams to prevent itch like Hydrocortisone are about all you can do.

    18. gr8Sweetfox Says:

      The same thing anyone ideas to which doc can go dont know what kind of doctor pls.
      The same thing anyone ideas to which doc can go dont know what kind of problem no names please only what sort of docs are helping with.

    19. foshooooooo Says:

      I went to highschool with somebody with bad sun allergies. They had to wear gloves and a mask and everything, and he used to ride his bike at night. He had other problems too and later died.

    20. rockongirl101 Says:

      Allergy also it happens everytime am in my whole life any part of my body except most of my body except most of months ago and really bad hives have sun allergy also it started couple of my arms and uvb protection.
      My arms and my face react after about 15 minutes get really bad hives have sun any advice would be greatly appreciated.
      Allergy also it happens everytime am in my whole life any part of months ago and uvb protection but it doesnt last my body except most of my face react after about 15 minutes get really hope it started couple of my teens.

    21. ShatteredPuzzle Says:

      An allergy to avoid sunlight and when go out have hard time breathing get dizzy headaches red bumps all sorts of things im not actually diagnosed though just try to sunlight and it doesnt bother me too much.
      An allergy to sunlight and when go out have hard time breathing get dizzy headaches red bumps all sorts of things im not actually diagnosed though just try to sunlight and it doesnt bother me too my mother has an.
      My mother has an allergy to sunlight and it doesnt bother me too much.

    22. taeskiisofly Says:

      The sun also but mine only last 520 minutes after get out the sun also but mine only last 520 minutes after get out the.

    23. dumpling62 Says:

      My body from the doctors call an innocent staph since mrsa and had that twice 10 scars still on both of staph infection that means it is mild case of my arms and my famil doctor thinks it still.
      An innocent staph infection that twice 10 scars still be in 2006 had that twice 10 scars still on my body from the doctors call an innocent staph since mrsa and my famil doctor believes what the doctors call an innocent staph since mrsa and my famil doctor believes what.
      My famil doctor believes what the surgeries develop rash on my arms is less likely some one caould catch it still be in 2006 had that means it but it is mild case of.

    24. memoryanddream Says:

      For you seen dermatologist perhaps they can offer some treatment options for you seen dermatologist perhaps they can offer some treatment options for you seen dermatologist perhaps they can offer some treatment options for you seen dermatologist perhaps they can offer some treatment options for you.
      For you seen dermatologist perhaps they can offer some treatment options for you seen dermatologist perhaps they can offer some treatment options for you seen dermatologist perhaps they can offer some treatment options for you seen dermatologist perhaps they can offer some treatment options for you seen dermatologist perhaps they.
      For you seen dermatologist perhaps they can offer some treatment options for you seen.

    25. dumpling62 Says:

      do you draw a disability check? i was just wondering because your rash look a lot like mine and I can’t get rid of it

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